Fragile X is a known cause of autism, and about 5% of autism diagnoses can be traced to fragile X. Looked at another way, about one third of people with fragile X are also autistic.
Fragile X is a genetic mutation that can result in symptoms that look very similar to autism (hand biting, flapping, social anxiety), but most people with fragile X are interested in social interaction. As a result, most people with fragile X don't meet the criteria for an autism spectrum disorder. Between 15% and 30% of children with fragile X, however, do also meet the criteria for an autism spectrum disorder.
Fragile X Syndrome: In Depth
This article provides a very substantial overview of the disorder, its causes and its treatments.
Sorting Through the Info
"Sorting through the wealth of online information on fragile X can be a daunting task," says our Guide to Special Needs Parenting. "Start with this recommended list of resources to find the information you need to understand and help your child."
The National Fragile X Foundation
This site includes a wide range of resources related to fragile X, including information for parents and technical papers on the subject. You'll also find some interesting pieces about the connection between fragile X and autism.
Families and Fragile X Syndrome
The National Institute of Child Health and Development has developed a 48-page booklet on the topic of fragile X and its impact on the family. You can download it for free as a .pdf file.
Preparing the School for Your Child with Fragile X Syndrome
Learn how to create an information packet for your child's teacher and school administration. Click on links to find specific recommended approaches to teaching a child with fragile X. You can even print out the article to share with your child's teacher - as a starting place in the process of positive communication.
Lesson Planning Guide for Students with Fragile X Syndrome
At nearly 200 pages long, this guide to educating children with fragile X covers the entire school-age spectrum (K-12) and includes an amazing collection of information about learning and teaching styles, ages and stages, and much more. While the book is written for teachers, it can also be tremendously helpful for parents. The best thing about this guide -- it's free!
The Fragile X Packet
Are you concerned about Fragile X and aggression? Sexuality? Education? It's all covered in the Fragile X Foundation's packet of information, available free by mail order. If you want more personalized information about fragile X and your child, you can call the number provided on this website to talk to a human being, or connect with a local support group.
