While some of these therapies are appropriate for adults with AS, says Dr. Shana Nichols of the Fay J. Lindner Center for Autism, treatment for adults really depends upon the individual adult's response to the diagnosis. And responses can run the gamut from joy to anger -- and everything in between.
Says Dr. Nichols: "Some people are overjoyed because finally everything makes sense to them -- why they can't hold a job, keep a relationship. They have blamed themselves all their lives. Now they have a framework in which to understand their difficulties and their strengths. For a lot of people, it's a relief."
Of course, there is no obligation to do anything about an AS diagnosis, and some people simply stop with the diagnosis and walk away. For those people who are interested in exploring their AS further, says Nichols, "We do a debriefing and exploration focused what they feel now that they know about it. We do a diagnostic 'life mapping' and explore that; we talk about how all people with AS are different from one another. Then we make a plan from there: We say you came there for a reason,' and we ask, 'Where would you like to go next?'"
Some of the issues Nichols explores with her patients include quality of life concerns such as leisure interests, social activities, health, employment and family. "We look at all the different areas that make up quality of life, see how they're doing, and where they want to make some changes."
In addition to working on personal goals, says Nichols, "Family work is often indicated. There are often rifts that have occurred where siblings are no longer talking. We explore the questions, 'What do you want to tell your family? How would you like to repair relationships?' Sometimes we have families come in to work on issues together."
Beyond cognitive therapy, adults with an AS diagnosis have a number of other treatment options. They can request that their diagnostician write a report that clearly outlines diagnostic issues, IQ, and adaptive behaviors. With that report, adults diagnosed with AS can often qualify for services provided by state and/or federal agencies. Such services range from cognitive therapy to vocational training, job placement, health insurance, and, in some cases, housing.
Some of the therapies that are useful for children are also helpful for adults with AS. For example, sensory integration therapy can be helpful in alleviating hypersensitivity to sound and light; social skills therapy (often in the form of life or job coaching) can improve job situations and even friendships.
Perhaps most important, say AS advocates, is "do it yourself" therapy. Adults with AS have access to books, support groups, conferences and other resources that provide insight, ideas and information on all aspects of life with AS. The Global and Regional Partnership for Asperger Syndrome (GRASP) offers a whole page of links to sites and resources to support adults with AS seeking ideas, insights, and next steps.
Asperger's Syndrome Fact Sheet, National Institutes of Neurological Disorders. Prepared by: Office of Communications and Public Liaison National Institute of Neurological Disorders and Stroke National Institutes of Health Bethesda, MD 20892 Publication date January 2005.
Interview with Michael John Carley, Executive Director of the Global and Regional Asperger Syndrome Partnership. April, 2007.
Interview with Dr. Shana Nichols, North Shore Long Island Jewish Health System, Fay J. Lindner Center for Autism. May, 2007.
Online Asperger Syndrome Issues and Support (OASIS) Website. "Adult Issues, Resources and Contributions From and For Individuals with AS and Autism."