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By Lisa Jo Rudy, About.com Guide to Autism

"Ransom Notes" Campaign Ends with Note to the Autism and Disabilities Communities

Thursday December 20, 2007
Harold S. Koplewicz, M.D., Founder and Director of the New York University Child Study Center, was the man behind the now-infamous "ransom notes" campaign. The purpose of the campaign, which posted "ransom notes" from "autism" (and other childhood disabilities), was to raise awareness. Indeed it did raise awareness - along with a great deal of anger on the part of those who live - and even thrive with - those disabilities.

Over the past few weeks, Koplewicz received thousands of emails, letters and petitions, asking him to end the campaign and apologize for his message. As of today, the campaign is at an end, and here is what Dr. Koplewicz has to say to the community at large:

A Message Regarding the "Ransom Notes" Public Awareness Campaign

When we launched our "Ransom Notes" public awareness campaign two weeks ago, our goal was to call attention to the millions of children with untreated psychiatric and learning disorders. We wanted a campaign that would grab people's attention, break through the clutter, and serve as a wake up call to what we believe is America's last silent public health crisis. We felt something dramatic was needed to call attention to the dire outlook for children with untreated disorders: higher risk for academic failure, school dropout, substance abuse, suicide, unemployment, and imprisonment.

The campaign succeeded in getting people's attention and sparking dialogue, but much of the debate centered on the ads instead of the issues. We've received thousands of calls and letters from parents, mental health professionals, educators, advocates, and concerned third parties, all of whom are passionate about helping children. While many people praised the campaign and urged us to stay the course, others were troubled by it.

Though we meant well, we've come to realize that we unintentionally hurt and offended some people. We've read all the emails, both pro and con, listened to phone calls, and have spoken with many parents who are working day and night to get their children the help they need. We have decided to conclude this phase of our campaign today because the debate over the ads is taking away from the pressing day-to-day work we need to do to help children and their families. They are and remain our first concern.

Our goal was to start a national dialogue. Now that we have the public's attention, we need your help. We would like to move forward and harness the energy that this campaign has generated to work together so that we do not lose one more day in the lives of these children. We hope you will partner with us to bring the issues surrounding child and adolescent mental health to the top of America's agenda. Work with us as we fight to give children and their families equal access to health insurance, remove the stigma that the term "psychiatric disorder" so clearly still elicits, and, most importantly, support the drive to make research and science-based treatment a national priority.

We invite all of you to continue this conversation online at a "town hall" meeting that we will hold early next year as we plan the next phase of our national public awareness campaign on child mental health. Look for details on our web site www.AboutOurKids.org.

Sincerely,

Harold S. Koplewicz, M.D. Founder and Director, New York University Child Study Center

Rereading this letter as I insert it in this blog, I realized that it really isn't an apology at all. It's simply a concession that the ads are becoming a focus of debate. More disturbingly, Koplewicz says that one of the Child Study Center's agendas is to "remove the stigma that the term "psychiatric disorder" so clearly still elicits" - yet the campaign itself was all about shocking the public with the very idea of a child with a psychiatric disorder (not that it's at all clear that autism is a psychiatric disorder anyway... but that's a debate for another day!). Instead of taking a step toward destigmatizing children with these disorders, this campaign presented children as helpless, hopeless, faceless victims - and their parents as victims-by-proxy.

To be honest, this letter doesn't settle the issue for me. In fact, it raises more questions than it answers. But what's your feeling about this letter? Am I being too sensitive? Share your thoughts!

Comments

December 20, 2007 at 12:04 pm
(1) Julie says:

I got the message loud and clear that they are pulling the ads because the bombardment of phone calls and emails are taking up too much staff time!

December 20, 2007 at 6:00 pm
(2) Robin H. Morris says:

You are preaching to the choir here. I have never believed that autism fell into the catagory of a psychiatric disorder; in addition, this is not a “silent disorder” either.
Autism is overt, for the most part…and when an ad reads “WE HAVE YOUR CHILD” who are they addressing?
THE PARENTS! Who is supposed to wake up…we have been kicked out of bed and shaken up big time!

December 21, 2007 at 8:41 am
(3) jay gonus says:

So typical of the way people think. Let’s sweep it all under the rug and raise a ruckus about the pink elephant that somebody actually pointed out. I applaud the good doctor. People need to be shocked awake. Wasted energy on the messenger and not the message.

December 21, 2007 at 8:58 am
(4) Canvas Grey says:

Oh, you’ve hit the nail on the head when you said, “…a concession that ads are becoming a focus of debate.”

It would be difficult for me to contemplate partnering with people who still think this was a good idea.

Integrity still means something to me. Not all means to an end are good or right. This isn’t an apology.

December 23, 2007 at 9:23 pm
(5) A.S. says:

Too little too late?
It took Harold Koplewicz too long to realize that hurting people you want to “help” is not acceptable collateral damage. We should write these officials to thank them for pulling the ads and request that they keep an eye on Dr. Koplewicz to make sure he doesn’t try anything this dirty again to drum up business in the name of public awareness:

Kenneth Langone, Board Chairman
New York University Medical Center
ken@invemed.com

Martin Lipton, Board of Trustee Chairman
New York University
mlipton@wlrk.com

John Sexton, President
New York University
john.sexton@nyu.edu

Robert Grossman, Dean & President
New York University Medical Center
robert.grossman@nyumc.org

December 25, 2007 at 4:02 pm
(6) Kara Thrasher-Livingston says:

This is not an apology.
It’s another way to impose definition on people who have different ways of being, placing illness and deficit as what defines them first. Saying “we’re really doing it all for the families/children etc” is a classic way to try to sidestep the reality of how insulting this is to individuals with autism and their families.
What else should we expect from a group of professionals whose existence depends on perpetuation of medical or psychologically based deficits?
By the way I am realistic, I am a mother of 2 with autism and sister of one. I’ve also worked in social services for 12 years.

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